In which I discuss movies, books, and other things that make me more than my diagnosis.
July 23, 2020
Original Creative Piece: Sometimes
July 11, 2020
Spoon Theory and being an Introvert
June 27, 2020
One Year cancerversary
Well,
one year ago today, I was diagnosed with brain cancer. I'm still here,
still mostly me, minus a few bones and plus a few extra scars. When it
comes down to it, I don't want to celebrate this as some special
milestone; I just want to say that inertia keeps me going, and as long
as I can keep on going, I will keep on going.
As a young kid, I remember taking a special test, and in the 3rd grade I was moved to the Gifted class. I was proud of being a smart kid. I loved to read (still do) but for me, for most of my life, my proudest asset was my intelligence, my logic, my rationality. Life played a dirty trick on me by letting this happen, and it just wasn't fair. I felt betrayed, lost.
I was afraid.
But
it wasn't just the cancer, I was afraid of losing myself. I begged my
Rockstar Neurosurgeon not to make me stupid. I was so scared to wake up
from actual literal brain surgery having forgotten how to read, how to
spell, how to write.
Would
I even know if that part of me was erased? Who would I be without that
part of me? My Rockstar Neurosurgeon is a true Rockstar, and I came out
of that first (of multiple) brain surgeries with very little in the way of
deficits. My reading speed slowed down, but otherwise I was okay.
Since
then I've had radiation beamed directly into my head, three different
kinds of chemo, three brain surgeries, countless MRIs, finding more
tumors, and the never-ending isolation of Covid quarantine. But
after a year of all of this, I am doing okay. As okay as I can be with
cancer.
Yeah, I have cancer, but I'm not helpless, and I'm not dying
yet. I spent a lot of time thinking about my inevitable mortality,
staring at that bus. It took me a long time, but I am finally able
to stop thinking about it, at least for days or even weeks at a time.
It's not about dying of cancer any more. For now, I choose to mark this
milestone by living with cancer. No cakes or parties because I don't
want your germs, but I won't say no to a few more penpals, and if you
would like to donate I still have that Gofundme, Amazon wish list, Cashapp, stuff
like that. Do you know how much it costs to keep up with prescription copays?It's a LOT
My family and friends who have been here for me, thank you for all of your love and support. It means more to us than you could possibly know.
Ok, ready to hear the original poem of the day?
Things they don’t tell you about cancer:
It is lonely
It is frightening
Everything hurts
The chemo isn’t even the worst part
Well, sometimes, it is
There is so much to keep track of
Like a full-time job
Flu season is scary
Covid quarantine is pants-shittingly terrifying
You can’t hug every friend or family member you see
No matter how much a good strong embrace would help
It is too dangerous
Besides
Your skin will hurt
Your stomach will hurt
Even hugging your dog will hurt
there is so much fear
Is this a normal cancer symptom?
When should I worry?
When should I just take a valium and go to sleep?
How to turn off the loop in my head?
Cancer cancer cancer
Cancer cancer cancer
Eat dream and breathe cancer
It erases who you were
A professional
A friend
A sister
A daughter
Instead you become the diagnosis
Cancer cancer cancer
A reader
A writer
A mentor
Cancer cancer cancer
Consuming you
Destroying you
Shredding you to bits
Tearing away all of your softest spots
Leaving you with only the hardest pieces
Cancer cancer cancer
It leaves you with nothing but stone
They don’t tell you that you will have to be stronger than you have ever been
That the scars will harden you
Preparing you for the fight of your literal life
It will be quiet
Whispers and murmured euphemisms
So many prayers and thoughts
Overflowing good vibes and warm fuzzies
They won’t tell you any of these things.
- 11 June 2020
That's my stuff for today. I hope you have a good day. Love you guys!
June 11, 2020
Inspired and motivated and random thoughts
May 19, 2020
Fave Quote of the Book: Small Victories by Anne Lamott (Part 2)
So, where did we leave off? (LINK)
Was I saying that I came from an unhappy family?
What does it mean to have a happy family?
Who knew that I'd be exploring such difficult questions in a silly little blog that is supposed to be about non-cancer. Yet, here we are.
My family is special. I remember a childhood of laughter, silliness, bad jokes, talking lobsters, and spontaneous trips to unexpected locales.
I also remember a childhood with tears, fear, hurt and misunderstanding, and being misunderstood. As a shy introvert from an exceptionally loud family of extroverts, I spent too much time with my own thoughts, wishing I fit in better. I had feelings I didn't understand, couldn't put words to, and as an early reader who read "at the college level" by the time I was 11, it was unusual to be unable to find the words I needed.
We fought (and still fight). We cried (and still cry). We try to understand each other, even though it often feels like we all came from different planets. Are all families like that? I honestly don't know.
We had love, but we also had an unfair share of unhappiness. Well, I call it unfair, but I don't know if that is true either.
We have hard conversations, hard feelings, and hard hearts, and all the wishing in the world can't undo some of the terrible things we've done, or unsay the terrible things we've said. Lamott says,
"Forgiving people doesn’t necessarily mean you want to meet them for lunch. It means you try to undo the Velcro hook. Lewis Smedes said it best: “To forgive is to set a prisoner free and discover that the prisoner was you.” (Lamott 117).As family, we should always be prepared to forgive, because we are family, right? Even the Bible says we should turn the other cheek, so forgiveness is the word of the day, yes?
Maybe.
For me, explicit forgiveness is not free. Again we come back to the idea of grace. I am not full of grace, I might be full of something, but grace ain't it. Forgiveness comes at the cost of acknowledging the wrong, committing to never repeat it, and apologizing. An apology involves the words "I am sorry" or "I apologize for the hurt I caused to you."
A non-pology might include the words "I'm sorry if..." or "I'm sorry but..."
"I'm sorry if I hurt your feelings" is NOT an apology. "I'm sorry but I didn't mean it that way" is NOT an apology. I'm sorry for anything that I might have done" is not an apology. It is so difficult to find grace when trust is broken. Trust might be healed if the apology includes a commitment to not repeat the transgression. Trust might be healed if the transgressor takes some action toward healing. Trust might be healed by respecting boundaries.
I am no expert on grace, but I have so many expectations. I love the idea of grace, of love undeserved and without conditions. I want to learn that grace.
My therapist tried to teach me about giving myself grace. Do you want to know what is even harder? Giving grace to others. But as Smedes above said, forgiveness sets us free. Perhaps that is the grace that I am looking for. That doesn't mean that my heart is left open to be trampled by any and all who wish to stomp on it. The doesn't mean that I have no hurts left, because I do. But in my quest for giving myself grace, I have to try to let go of those hurts and move forward. Unconditional love is not the same as unconditional trust, but maybe we can learn to get closer to that, no matter how far away that grace might seem.
Read this book. It is by far one of the best I've stumbled across in a while.
May 13, 2020
Fave Quote of the Book: Small Victories by Anne Lamott
Anne Lamott writes about faith, family, and community in essays that are both wise and irreverent. It’s an approach that has become her trademark. Now in Small Victories, Lamott offers a new message of hope that celebrates the triumph of light over the darkness in our lives. Our victories over hardship and pain may seem small, she writes, but they change us—our perceptions, our perspectives, and our lives. Lamott writes of forgiveness, restoration, and transformation, how we can turn toward love even in the most hopeless situations, how we find the joy in getting lost and our amazement in finally being found.I first read Anne Lamott in grad school. Her book, Bird by Bird, changed the direction of my education, my career, and my life. Although Lamott and I have some things in common, our belief systems are vastly different, but that's ok. Obviously, I don't know this woman, but from her writing, I get the impression that she is kind, warm, and thoughtful. I'd love to have a meal with her, or buy her a cup of coffee.
Profound and hilarious, honest and unexpected, the stories in Small Victories are proof that the human spirit is irrepressible.
Throughout my diagnosis, I've been heavily contemplating the idea of grace. My therapist says I should give myself grace, but I don't always know what that means. She says I should forgive myself, and I don't always know how to do that. I have spent the majority of my life mastering negative self-talk; what is this grace we speak of?
I feel like Lamott understands me, without even knowing me. One of my favorite parts of this book is when she says,
"When you are on the knife’s edge—when nobody knows exactly what is going to happen next, only that it will be worse—you take in today" (Lamott 4).I feel that this is my diagnosis, summed up in one sentence. I'm still in a place of intentional ignorance. This diagnosis has taught me to take in today, one day at a time. Like an addict, I don't count too far ahead in the future. I count tomorrow, and the rest come as it may.
Lamott also talks about her family:
"Ours was like any other family, basically well-meaning, with lots of addictions, secrets, and mental illness. We were such a polite catastrophe that everyone’s energy went to survival, self-medication, Mask Making 101, and myopia" (Lamott 161).Every family has their secrets, right? As Tolstoy said, "All happy families are alike; each unhappy family is unhappy in its own way" (Anna Karenina). While I'm not prepared to share all of our secrets, I will say that Tolstoy had his wisdom.
Am I saying that I came from an unhappy family?
Stay tuned to find out more!
May 5, 2020
"But you look so strong"
April 8, 2020
Identity crisis: Who even am I?
I'm back!
I want to tell you a story about my identity crisis that I had last night that almost broke me. For those of you who don't know, I am Puerto Rican and Dominican, a mix that is quite rare in the area in which I live. Most of the few Hispanic people in my area are Mexican, which means that dialect and food are different enough that I just don't quite fit in. My local grocery store stopped selling anything Goya (the food of my people) a few years ago; the next closest grocery store only occasionally has the Goya goodness that I need.
Now, I am not what you might call a *good* Latina. I am woefully out of practice with my Spanish, which I understand but barely speak anymore. I only rarely cook Hispanic food, and when I do, I have to call my sister to remind me of the recipes that families never write down.
I do, however, use the seasoning of my people, although it is getting harder and harder to find on a local level
Like I mentioned, the food (and drink) of my people is hard to find. The second closest grocery store carries a generic version which I've not dared to try, because I grew up only drinking Goya brand, and this is one of those instances where brand loyalty means so much more.
Now, the fifth closest grocery store is about nine miles away from my house. The Husband and I happened to venture over there the other day, because we remembered that this particular grocery store has an actual international section, with options beyond taco kits. This grocery store, carries Goya products!
March 11, 2020
Happy Birthday, Mr. Adams!
You may or may not remember, but The Hitchhiker's Guide to the Galaxy is my favorite book.
When I am feeling sad, or unsettled, lost, or just not right, I can pick up this book and open it to literally any page and start reading. It doesn't matter where I end up, it's always a good part of the story.
I am very pleased to say that recently, The Husband started reading this book. Now, bear in mind, this book, which is very important to me, is almost 800 pages long. I know that The Husband must like me at least a little, because it is quite a commitment to read someone else's favorite 800-page book. Meanwhile, every few nights, I glance over at his kindle and read over his shoulder for a few minutes. I can't say if he will love this book as much as I do, but I can say that it makes me feel even more loved that he is reading this special story for me. The occasional snicker I hear while he is reading fills my heart with even more love for this book AND this man.
I've had some people posit to me that this book is not actually very well-written. I ignore those people. Yes, I do teach Composition and occasionally Literature at the community college, but that doesn't mean that I am restricted to only reading capital-L Literature. I don't care if this book is not Literature. This story fills my heart, and any opportunity I have to share it brings more love and laughter to my life.
Dearest Husband of mine, I only hope that as you continue working your way through this monster of a book, that you continue having fun with it. That's really the point, right?
March 4, 2020
Fave Quote of the Book: So Long and Thanks for All the Fish
But there is also the leather-bound copy with gilded edges. The paperback radio-script. The movie. The BBC miniseries (on Prime). All twelve episodes of the radio play. And most recently, this:
So Long and Thanks for All the Fish by Douglas Adams
Amazon Link
Now, why would I need a copy of just book 4 of the trilogy?
Before I answer that, let me tell you a story. Back before The Husband was The Husband, he worked at a bookstore. Dangerous place to get a paycheck if you are me, but luckily (I suppose) I did not work at that bookstore. But oh how I loved that bookstore. And I found out that people who work at these type of bookstores have access to things that I never dreamed of. Rare books. Databases. Dealers.
One day, the not-yet-husband gave me a gift. I don't remember if it was a Christmas gift, or a birthday gift, or a just-because gift, but this gift was a very effective love letter to me. He got me a very rare signed first edition of a book by one of my favorite authors (Smoke and Mirrors by Neil Gaiman). When he explained to me what he went through to get this book for me, that was one (of the many) moments that I knew this wonderful man loved me.
Over the years, I have acquired quite a few signed books, as gifts from friends, from The Husband, as lucky finds. It is important that you know that signed books are not for reading. They are for admiring.
What that means is that for every book of which I have a signed copy, I have a reading copy. We don't just go pawing signed books. We look with our eyes, but never touch with our hands.
Now, prepare yourselves. This is gonna get mushy.
I know that every signed book I've gotten from The Husband has been a love letter to me. He knows exactly the way to my heart. My love letter to him is in sharing my favorite books with him. He doesn't have to love them the way that I do, but getting a peek into these beloved books gives him a peek into my soul. Sometimes I feel like this is not enough, but those books make me who I am. Understanding my favorite books means he understands me.
My favorite quote from this specific book (but not from the complete series) is from Wonko the Sane:
Fave quote:
“[T]he reason I call myself by my childhood name is to remind myself that a scientist must also be absolutely like a child. If he sees a thing, he must say that he sees it, whether it was what he thought he was going to see or not. See first, think later, then test. But always see first. Otherwise you will only see what you were expecting” (Adams 587; emphasis added).
Now, I am no scientist (too much math involved) but I love this. Always see first.
Have I mentioned how much I love The Husband? Not just because he knows my love language is books, but because he knows which books, which means he knows me. He sees me.
February 10, 2020
Fave Quote of the Book: The Handmaid's Tale by Margaret Atwood
In Margaret Atwood’s dystopian future, environmental disasters and declining birthrates have led to a Second American Civil War. The result is the rise of the Republic of Gilead, a totalitarian regime that enforces rigid social roles and enslaves the few remaining fertile women. Offred is one of these, a Handmaid bound to produce children for one of Gilead’s commanders. Deprived of her husband, her child, her freedom, and even her own name, Offred clings to her memories and her will to survive. At once a scathing satire, an ominous warning, and a tour de force of narrative suspense, The Handmaid’s Tale is a modern classic.
I've taught this novel in the classroom. The experience of teaching this novel was made even more interesting because this book is easily in my top 10 favorite books of all time. Point of interest: I collect signed books. I've always wanted a signed copy of this book, and interestingly, when I mentioned this in class in the fall of 2017, I failed to be entirely clear with my intent. At the end of that semester, I received a gift from three students: a signed copy of the book.
Let me clarify. This book is not signed by Margaret Atwood. Instead, it was signed by those three students.
"Mrs. Blank,The class these boys were in was one that affected me deeply. It was my third year teaching, and this was one of the first classes in my short experience where I discovered that the dynamics of a classroom can make it feel like only a classroom, or the dynamics can make it feel like a real community. This was a class of very smart students with very bright futures, and we laughed, but we also had some very serious conversations. I won't say that this specific group of students was my favorite class I've ever taught, but they sure came close. It was because of these students that I realized that teaching did not have to be painful. I learned as much from those students as I hope they learned from me.
Coming into college, the impression we all were under was that all college professors sucked and we would be miserable, especially in English. Over the past semester, you have not only been one of the coolest teachers we've had in high school and in college, but you've been one of the best. You've taught us so much but at the same time, we've had a lot of fun. I know myself, Student B, and Student C have been a handful and we appreciate you dealing with all our crap. You said you wanted a signed copy of this book so we went out and got you one. See you around campus, Student A, Student B, and Student C"
Without further ado, my favorite quote from this book, when the protagonist is speaking privately and illicitly with her Commander in his office: He tells her that the Republic of Gilead is better than what they lived with before. "Better?" The protagonist asks. "How can he think this is better?":
"Better never means better for everyone, he says. It always means worse, for some" (Atwood 211).
This is something that I hadn't thought much about, in general, or specific to this story; nonetheless, when I first read this, I underlined it as something to contemplate. Is this always true? It feels like it is a universal truth, but I am not sure. Is this what life is about: a zero-sum game where some win and some lose?
Those special students of mine expected to be miserable in my class. (Why do so many people hate English class?).
I was able to show them that my class could be better than what they expected, but I am sure, over the years, that there have been enough students whom I was unable to reach.
Even in a book that I have read easily a dozen times, I am still able to share those glimpses of magic, those moments when the world between the pages grabs at you and refuses to let go.











