In which I discuss movies, books, and other things that make me more than my diagnosis.
August 8, 2020
Published! "Mother's Love"
June 27, 2020
One Year cancerversary
Well,
one year ago today, I was diagnosed with brain cancer. I'm still here,
still mostly me, minus a few bones and plus a few extra scars. When it
comes down to it, I don't want to celebrate this as some special
milestone; I just want to say that inertia keeps me going, and as long
as I can keep on going, I will keep on going.
As a young kid, I remember taking a special test, and in the 3rd grade I was moved to the Gifted class. I was proud of being a smart kid. I loved to read (still do) but for me, for most of my life, my proudest asset was my intelligence, my logic, my rationality. Life played a dirty trick on me by letting this happen, and it just wasn't fair. I felt betrayed, lost.
I was afraid.
But
it wasn't just the cancer, I was afraid of losing myself. I begged my
Rockstar Neurosurgeon not to make me stupid. I was so scared to wake up
from actual literal brain surgery having forgotten how to read, how to
spell, how to write.
Would
I even know if that part of me was erased? Who would I be without that
part of me? My Rockstar Neurosurgeon is a true Rockstar, and I came out
of that first (of multiple) brain surgeries with very little in the way of
deficits. My reading speed slowed down, but otherwise I was okay.
Since
then I've had radiation beamed directly into my head, three different
kinds of chemo, three brain surgeries, countless MRIs, finding more
tumors, and the never-ending isolation of Covid quarantine. But
after a year of all of this, I am doing okay. As okay as I can be with
cancer.
Yeah, I have cancer, but I'm not helpless, and I'm not dying
yet. I spent a lot of time thinking about my inevitable mortality,
staring at that bus. It took me a long time, but I am finally able
to stop thinking about it, at least for days or even weeks at a time.
It's not about dying of cancer any more. For now, I choose to mark this
milestone by living with cancer. No cakes or parties because I don't
want your germs, but I won't say no to a few more penpals, and if you
would like to donate I still have that Gofundme, Amazon wish list, Cashapp, stuff
like that. Do you know how much it costs to keep up with prescription copays?It's a LOT
My family and friends who have been here for me, thank you for all of your love and support. It means more to us than you could possibly know.
Ok, ready to hear the original poem of the day?
Things they don’t tell you about cancer:
It is lonely
It is frightening
Everything hurts
The chemo isn’t even the worst part
Well, sometimes, it is
There is so much to keep track of
Like a full-time job
Flu season is scary
Covid quarantine is pants-shittingly terrifying
You can’t hug every friend or family member you see
No matter how much a good strong embrace would help
It is too dangerous
Besides
Your skin will hurt
Your stomach will hurt
Even hugging your dog will hurt
there is so much fear
Is this a normal cancer symptom?
When should I worry?
When should I just take a valium and go to sleep?
How to turn off the loop in my head?
Cancer cancer cancer
Cancer cancer cancer
Eat dream and breathe cancer
It erases who you were
A professional
A friend
A sister
A daughter
Instead you become the diagnosis
Cancer cancer cancer
A reader
A writer
A mentor
Cancer cancer cancer
Consuming you
Destroying you
Shredding you to bits
Tearing away all of your softest spots
Leaving you with only the hardest pieces
Cancer cancer cancer
It leaves you with nothing but stone
They don’t tell you that you will have to be stronger than you have ever been
That the scars will harden you
Preparing you for the fight of your literal life
It will be quiet
Whispers and murmured euphemisms
So many prayers and thoughts
Overflowing good vibes and warm fuzzies
They won’t tell you any of these things.
- 11 June 2020
That's my stuff for today. I hope you have a good day. Love you guys!
May 19, 2020
Fave Quote of the Book: Small Victories by Anne Lamott (Part 2)
So, where did we leave off? (LINK)
Was I saying that I came from an unhappy family?
What does it mean to have a happy family?
Who knew that I'd be exploring such difficult questions in a silly little blog that is supposed to be about non-cancer. Yet, here we are.
My family is special. I remember a childhood of laughter, silliness, bad jokes, talking lobsters, and spontaneous trips to unexpected locales.
I also remember a childhood with tears, fear, hurt and misunderstanding, and being misunderstood. As a shy introvert from an exceptionally loud family of extroverts, I spent too much time with my own thoughts, wishing I fit in better. I had feelings I didn't understand, couldn't put words to, and as an early reader who read "at the college level" by the time I was 11, it was unusual to be unable to find the words I needed.
We fought (and still fight). We cried (and still cry). We try to understand each other, even though it often feels like we all came from different planets. Are all families like that? I honestly don't know.
We had love, but we also had an unfair share of unhappiness. Well, I call it unfair, but I don't know if that is true either.
We have hard conversations, hard feelings, and hard hearts, and all the wishing in the world can't undo some of the terrible things we've done, or unsay the terrible things we've said. Lamott says,
"Forgiving people doesn’t necessarily mean you want to meet them for lunch. It means you try to undo the Velcro hook. Lewis Smedes said it best: “To forgive is to set a prisoner free and discover that the prisoner was you.” (Lamott 117).As family, we should always be prepared to forgive, because we are family, right? Even the Bible says we should turn the other cheek, so forgiveness is the word of the day, yes?
Maybe.
For me, explicit forgiveness is not free. Again we come back to the idea of grace. I am not full of grace, I might be full of something, but grace ain't it. Forgiveness comes at the cost of acknowledging the wrong, committing to never repeat it, and apologizing. An apology involves the words "I am sorry" or "I apologize for the hurt I caused to you."
A non-pology might include the words "I'm sorry if..." or "I'm sorry but..."
"I'm sorry if I hurt your feelings" is NOT an apology. "I'm sorry but I didn't mean it that way" is NOT an apology. I'm sorry for anything that I might have done" is not an apology. It is so difficult to find grace when trust is broken. Trust might be healed if the apology includes a commitment to not repeat the transgression. Trust might be healed if the transgressor takes some action toward healing. Trust might be healed by respecting boundaries.
I am no expert on grace, but I have so many expectations. I love the idea of grace, of love undeserved and without conditions. I want to learn that grace.
My therapist tried to teach me about giving myself grace. Do you want to know what is even harder? Giving grace to others. But as Smedes above said, forgiveness sets us free. Perhaps that is the grace that I am looking for. That doesn't mean that my heart is left open to be trampled by any and all who wish to stomp on it. The doesn't mean that I have no hurts left, because I do. But in my quest for giving myself grace, I have to try to let go of those hurts and move forward. Unconditional love is not the same as unconditional trust, but maybe we can learn to get closer to that, no matter how far away that grace might seem.
Read this book. It is by far one of the best I've stumbled across in a while.
