Showing posts with label the little things. Show all posts
Showing posts with label the little things. Show all posts

July 27, 2020

Sometimes It IS the little things

There comes a point in time where quarantine makes you crazy.

Now, being generally introverted and a loner helps, and I actually like spending time with The husband who is also generally introverted and a loner so it's all good, right?

BUT.

We can only sit and stare at these four walls for so long. The walls are great, but remember, I started my own quarantine when last flu season started. October-ish?

That is a really long time to be stuck in the house.

So, this morning, I woke up like a light switch went off in my head. Back in the before, The Husband and I were avid campers. I can't exactly go camping in my current condition, but we sure as hell could string up our hammocks by the lake and just enjoy a morning of social distancing and changing the scenery.

So I put The Husband to work stringing up both of our hammocks. I usually do my own, but he very kindly took care of it so that I could save some energy. (He's so nice to me!)

With the exception of occasional walks, I've spent almost no time outside, which is tough because we used to camp and hike just about every summer, just to be outside. I don't like bugs crawling on me, but I really like being outside.

I digress.

So this is a lake near where we live.



And these are my feet in the hammock next to the lake near where we live. Beautiful view and very quiet and relaxing. I brought a notebook with every intention of writing a letter, or a poem, or maybe a story or something.


Instead, my feet stayed right there and I dozed off for a while. I woke up when my belly started grumbling, so we cleared up, grabbed lunch, and went home. All in all, I'd argue it was one of the best quarantine days we've had in a while.

June 27, 2020

One Year cancerversary



Well, one year ago today, I was diagnosed with brain cancer. I'm still here, still mostly me, minus a few bones and plus a few extra scars. When it comes down to it, I don't want to celebrate this as some special milestone; I just want to say that inertia keeps me going, and as long as I can keep on going, I will keep on going.

As a young kid, I remember taking a special test, and in the 3rd grade I was moved to the Gifted class. I was proud of being a smart kid. I loved to read (still do) but for me, for most of my life, my proudest asset was my intelligence, my logic, my rationality. Life played a dirty trick on me by letting this happen, and it just wasn't fair. I felt betrayed, lost.

I was afraid.

But it wasn't just the cancer, I was afraid of losing myself. I begged my Rockstar Neurosurgeon not to make me stupid. I was so scared to wake up from actual literal brain surgery having forgotten how to read, how to spell, how to write.

Would I even know if that part of me was erased? Who would I be without that part of me? My Rockstar Neurosurgeon is a true Rockstar, and I came out of that first (of multiple) brain surgeries with very little in the way of deficits. My reading speed slowed down, but otherwise I was okay.

Since then I've had radiation beamed directly into my head, three different kinds of chemo, three brain surgeries, countless MRIs, finding more tumors, and the never-ending isolation of Covid quarantine. But after a year of all of this, I am doing okay. As okay as I can be with cancer.

Yeah, I have cancer, but I'm not helpless, and I'm not dying yet. I spent a lot of time thinking about my inevitable mortality, staring at that bus. It took me a long time, but I am finally able to stop thinking about it, at least for days or even weeks at a time. It's not about dying of cancer any more. For now, I choose to mark this milestone by living with cancer. No cakes or parties because I don't want your germs, but I won't say no to a few more penpals, and if you would like to donate I still have that Gofundme, Amazon wish list, Cashapp, stuff like that. Do you know how much it costs to keep up with prescription copays?It's a LOT

My family and friends who have been here for me, thank you for all of your love and support. It means more to us than you could possibly know.

Ok, ready to hear the original poem of the day?

Things they don’t tell you about cancer:

It is lonely

It is frightening

Everything hurts

The chemo isn’t even the worst part

Well, sometimes, it is

There is so much to keep track of

Like a full-time job

Flu season is scary

Covid quarantine is pants-shittingly terrifying

You can’t hug every friend or family member you see

No matter how much a good strong embrace would help

It is too dangerous

Besides

Your skin will hurt

Your stomach will hurt

Even hugging your dog will hurt

there is so much fear

Is this a normal cancer symptom?

When should I worry?

When should I just take a valium and go to sleep?

How to turn off the loop in my head?

Cancer cancer cancer

Cancer cancer cancer

Eat dream and breathe cancer

It erases who you were

A professional

A friend

A sister

A daughter

Instead you become the diagnosis

Cancer cancer cancer

A reader

A writer

A mentor

Cancer cancer cancer

Consuming you

Destroying you

Shredding you to bits

Tearing away all of your softest spots

Leaving you with only the hardest pieces

Cancer cancer cancer

It leaves you with nothing but stone

They don’t tell you that you will have to be stronger than you have ever been

That the scars will harden you

Preparing you for the fight of your literal life

It will be quiet

Whispers and murmured euphemisms

So many prayers and thoughts

Overflowing good vibes and warm fuzzies

They won’t tell you any of these things.

-         11 June 2020

That's my stuff for today. I hope you have a good day. Love you guys!


April 8, 2020

Identity crisis: Who even am I?

Guess what.

I'm back!

I want to tell you a story about my identity crisis that I had last night that almost broke me. For those of you who don't know, I am Puerto Rican and Dominican, a mix that is quite rare in the area in which I live. Most of the few Hispanic people in my area are Mexican, which means that dialect and food are different enough that I just don't quite fit in. My local grocery store stopped selling anything Goya (the food of my people) a few years ago; the next closest grocery store only occasionally has the Goya goodness that I need.


Now, I am not what you might call a *good* Latina. I am woefully out of practice with my Spanish, which I understand but barely speak anymore. I only rarely cook Hispanic food, and when I do, I have to call my sister to remind me of the recipes that families never write down.

I do, however, use the seasoning of my people, although it is getting harder and harder to find on a local level
  
Anyway, I tell you all of this, because there is one special beverage from my childhood that holds a place near and very dear to my heart. The single only people I've met who like this stuff are either related to me, or of similar descent.

Ladies and gentlemen, nerds and cool kids alike, I present to you:
Evidently, it is an acquired taste. The Husband doesn't like it. To be honest, I don't know many other people who do. But for me, this drink is the epitome of being Latina, and drinking it brings me such comfort of days gone past that I can barely verbalize how much it means to me.

Like I mentioned, the food (and drink) of my people is hard to find. The second closest grocery store carries a generic version which I've not dared to try, because I grew up only drinking Goya brand, and this is one of those instances where brand loyalty means so much more.

Now, the fifth closest grocery store is about nine miles away from my house. The Husband and I happened to venture over there the other day, because we remembered that this particular grocery store has an actual international section, with options beyond taco kits. This grocery store, carries Goya products!

AND they had Malta!

Y'all. It was the last six pack, on the bottom of the shelf, and I felt myself pulled to it like a magnet in my heart was telling me exactly where to look. The heavens opened up, and I heard the angels sing. Finally, I could have some Malta!

Well, before I tell you anything else, I need to tell you a very important fact about brain surgery, chemo, and radiation. Any or all of the above have the ability to change your palate. Things that you used to like might taste disgusting to you, and things that were repulsive might be just the worst. For example, before all of this happened, although I only rarely drank alcohol, when I did, it was either liquor or wine.

Imagine my (and The Husband's) surprise when one day I decided I wanted a beer.

I don't like beer. 

I've never liked beer.

Even in college, I preferred cheap vodka over beer any day of the week.

Why did I suddenly crave beer? Keep in mind, I can't drink a whole beer, especially with the various medications I'm on, but a sip here or there wouldn't kill me, right? So The Husband had a bottle of Yuengling, and I grabbed the bottle and took a sip, and the beerness and tangy delicious flavor of this beer soothed my bitter soul in the most unexpected way.

I don't like beer. But this beer calls to me. I can drink maybe a third of a bottle before I start to worry about medical interactions, so I'm not a full-on beer drinker yet; however, The Husband now has to deal with Wife tax on his beer (a couple of sips from an ice cold bottle) then I'll leave him be.

Okay, so now you have the background information. The key point is that, although I suddenly like beer (seriously, it's weird), I never thought my palate had changed that much.

Remember that Malta?

Yesterday, I was waiting for dinner to be ready when I decided to crack one open before we ate. I took a biiiiig swig.

I gagged.


My dearest friends, who am I if a swallow of Malta makes me gag? Did the Rockstar Neurosurgeon scoop out the Latina part of my brain?

Maybe I should try another couple of swallows.


Nope. No good. It tasted chocolatey and rancid in all the wrong ways, and I was pretty sure that I was going to vomit. 

The spirits of my ancestors had abandoned me, left me to rot in a Malta-less hell where I didn't know who I was anymore.

So, I dumped out the rest of the bottle and tried not to cry.

The husband could see the distress in my face, and I wanted to lay down on the floor and cry.

Remember how I said it was the last pack on the bottom shelf?

I just remembered that, and took a look at the bottle I had just dumped.

Expiration date - wait for it - July TWO THOUSAND SIXTEEN.

Yeah. For real. The bottle had 07/16 printed on it.

It was not that the Rockstar Neurosurgeon had scooped out the Latina part of my brain, it was that my palate can't handle FOUR-YEAR-OLD Malta!

Whoo! Needless to say, that was roller coaster ride of emotions.

I don't know how I'm going to find non-four-year-old Malta, but my already shaky identity is now slightly more solid. 

Can Malta be mailed?

January 17, 2020

Let's talk tea!

I used to hate tea. I thought it tasted like nothing more than dirt water. There was a time where I would rather die of thirst than drink nasty old tea. It was gross!

I was a coffee girl. I like my coffee like I like my men: strong and sweet! Cappuccino, macchiato, hot, cold, frappe, latte, any and all of the above.
Seriously, look at this sexy beast!
The thing about coffee is that these days my stomach can only handle one at a time. Since The Husband is at work, it is hardly worth it to make a pot of which I will only drink one. Also, I'm lazy.

Keurig and those types of systems are not for me. They are wasteful (all those pods) and they are not worth the price per cup. Also, the coffee just isn't very good. Yes, I am a coffee snob. I like Starbucks*. I think Dunkin burns their beans; their coffee is bitter in an unpleasant way. QT is good (and affordable)**.

Anyway. I digress.

So. Tea. Dirt water.

A few weeks ago, whatever week it was that we had winter for like four days here in South Carolina before summer came back with 60-70 degree weather, I decided that I was going to find a tea and I was going to like it.

The Husband (look at that face up there 😍) indulged my nonsense, and we went to the grocery store to buy a couple of boxes of tea. Keep in mind, we bought two boxes of tea even though I didn't (at that time) like tea.

Well, evidently, I made some good choices for once. It took a little trial and error, and the advice of a friend and feedback from a sister to refine my tea-making skills, but I am happy to report that I have somehow, in less (fewer?) than a couple of weeks, learned to love tea!
And this AWESOME mug was a gift from The Husband!

Turns out vanilla chai is delicious, and inspiring. Some of my best writing lately has been on vanilla chai.

Chamomile is amazing. Having something warm to drink before bed helps get me into the right cozy sleepy mood.

* This should be read as: I like to sit and just hang out at Starbucks while drinking their decent coffee.
** But not the best place to hang out...

January 6, 2020

HOCKEY!!

So, on Saturday night, The Husband and I were lounging around and poking about on Groupon. As a result of this stupid diagnosis, we have not done very much in the past several months, and it used to be that we could pretty regularly find something fun/interesting/unusual to do.

So I found on Groupon a deal for tickets to the Greenville Swamp Rabbits game yesterday. We had no other pressing plans for Sunday, so we went ahead and bought tickets to the game.

Now, I don't know what a swamp rabbit is. I looked it up, and they look like this:

Kinda cute, I guess?
Before I continue, I have to tell you that I LOVE hockey. I grew up watching the Hartford Whalers, and I've never found a team that I love as much as I loved the Whalers. When they ceased to exist, I continued to love hockey, but merely for the sake of the game. We went to the Swamp Rabbits game yesterday afternoon. Honestly, these days when I get a chance to see a hockey game, I'm excited, but I really don't care who wins. I am the screaming fan who cheers for whoever and boos the opposing team, but it doesn't really matter to me who wins. When it comes to hockey, I'm just there for a good time: pretzels, cotton candy, whooping and hollering like a fool. But still, when the Swamp Rabbits scored a tying goal with 4.2 seconds left in the 3rd period, I screamed so hard I might actually have left my tonsils behind! Unfortunately, they didn't pull it through in overtime, losing to the Florida Everblades* 5-4.

Go Swamp Rabbits!
Incidentally, in looking up info about the Hartford Whalers, it turns out that they are now the Carolina Hurricanes. It looks like I have a new team to be partial to!

Ok, so hockey.

I love hockey, but more importantly, I love The Husband for agreeing at the very last minute to take me to some random-ass hockey game for a team we had never heard of and a creature that was a mystery to us. We got surprisingly good seats, and as an experienced hockey spectator who also gets cold really easily because of the giant hairless spot on my head, I knew that I had to bundle up and wear layers.

I love that guy!
There we are having a grand old time cheering on the ridiculous Swamp Rabbits. Seriously, it's the most (good) excitement I've had all year!** We had such a good time at the game, and I cheered so hard that today I'm alternating hot tea and ice-cold water to soothe my poor throat.

As soon as the game was over and we were sitting in the car waiting to get out of the parking garage, we went back on Groupon and got tickets for another game soon!

The Husband really is the best.
Cheers to a life more extraordinary!

*What a stupid name. #SorryNotSorry
**I'm sorry, I had to crack the joke while the year is still young!