In which I discuss movies, books, and other things that make me more than my diagnosis.
July 27, 2020
Sometimes It IS the little things
June 27, 2020
One Year cancerversary
Well,
one year ago today, I was diagnosed with brain cancer. I'm still here,
still mostly me, minus a few bones and plus a few extra scars. When it
comes down to it, I don't want to celebrate this as some special
milestone; I just want to say that inertia keeps me going, and as long
as I can keep on going, I will keep on going.
As a young kid, I remember taking a special test, and in the 3rd grade I was moved to the Gifted class. I was proud of being a smart kid. I loved to read (still do) but for me, for most of my life, my proudest asset was my intelligence, my logic, my rationality. Life played a dirty trick on me by letting this happen, and it just wasn't fair. I felt betrayed, lost.
I was afraid.
But
it wasn't just the cancer, I was afraid of losing myself. I begged my
Rockstar Neurosurgeon not to make me stupid. I was so scared to wake up
from actual literal brain surgery having forgotten how to read, how to
spell, how to write.
Would
I even know if that part of me was erased? Who would I be without that
part of me? My Rockstar Neurosurgeon is a true Rockstar, and I came out
of that first (of multiple) brain surgeries with very little in the way of
deficits. My reading speed slowed down, but otherwise I was okay.
Since
then I've had radiation beamed directly into my head, three different
kinds of chemo, three brain surgeries, countless MRIs, finding more
tumors, and the never-ending isolation of Covid quarantine. But
after a year of all of this, I am doing okay. As okay as I can be with
cancer.
Yeah, I have cancer, but I'm not helpless, and I'm not dying
yet. I spent a lot of time thinking about my inevitable mortality,
staring at that bus. It took me a long time, but I am finally able
to stop thinking about it, at least for days or even weeks at a time.
It's not about dying of cancer any more. For now, I choose to mark this
milestone by living with cancer. No cakes or parties because I don't
want your germs, but I won't say no to a few more penpals, and if you
would like to donate I still have that Gofundme, Amazon wish list, Cashapp, stuff
like that. Do you know how much it costs to keep up with prescription copays?It's a LOT
My family and friends who have been here for me, thank you for all of your love and support. It means more to us than you could possibly know.
Ok, ready to hear the original poem of the day?
Things they don’t tell you about cancer:
It is lonely
It is frightening
Everything hurts
The chemo isn’t even the worst part
Well, sometimes, it is
There is so much to keep track of
Like a full-time job
Flu season is scary
Covid quarantine is pants-shittingly terrifying
You can’t hug every friend or family member you see
No matter how much a good strong embrace would help
It is too dangerous
Besides
Your skin will hurt
Your stomach will hurt
Even hugging your dog will hurt
there is so much fear
Is this a normal cancer symptom?
When should I worry?
When should I just take a valium and go to sleep?
How to turn off the loop in my head?
Cancer cancer cancer
Cancer cancer cancer
Eat dream and breathe cancer
It erases who you were
A professional
A friend
A sister
A daughter
Instead you become the diagnosis
Cancer cancer cancer
A reader
A writer
A mentor
Cancer cancer cancer
Consuming you
Destroying you
Shredding you to bits
Tearing away all of your softest spots
Leaving you with only the hardest pieces
Cancer cancer cancer
It leaves you with nothing but stone
They don’t tell you that you will have to be stronger than you have ever been
That the scars will harden you
Preparing you for the fight of your literal life
It will be quiet
Whispers and murmured euphemisms
So many prayers and thoughts
Overflowing good vibes and warm fuzzies
They won’t tell you any of these things.
- 11 June 2020
That's my stuff for today. I hope you have a good day. Love you guys!
April 8, 2020
Identity crisis: Who even am I?
I'm back!
I want to tell you a story about my identity crisis that I had last night that almost broke me. For those of you who don't know, I am Puerto Rican and Dominican, a mix that is quite rare in the area in which I live. Most of the few Hispanic people in my area are Mexican, which means that dialect and food are different enough that I just don't quite fit in. My local grocery store stopped selling anything Goya (the food of my people) a few years ago; the next closest grocery store only occasionally has the Goya goodness that I need.
Now, I am not what you might call a *good* Latina. I am woefully out of practice with my Spanish, which I understand but barely speak anymore. I only rarely cook Hispanic food, and when I do, I have to call my sister to remind me of the recipes that families never write down.
I do, however, use the seasoning of my people, although it is getting harder and harder to find on a local level
Like I mentioned, the food (and drink) of my people is hard to find. The second closest grocery store carries a generic version which I've not dared to try, because I grew up only drinking Goya brand, and this is one of those instances where brand loyalty means so much more.
Now, the fifth closest grocery store is about nine miles away from my house. The Husband and I happened to venture over there the other day, because we remembered that this particular grocery store has an actual international section, with options beyond taco kits. This grocery store, carries Goya products!
January 17, 2020
Let's talk tea!
I was a coffee girl. I like my coffee like I like my men: strong and sweet! Cappuccino, macchiato, hot, cold, frappe, latte, any and all of the above.
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Seriously, look at this sexy beast! |
Keurig and those types of systems are not for me. They are wasteful (all those pods) and they are not worth the price per cup. Also, the coffee just isn't very good. Yes, I am a coffee snob. I like Starbucks*. I think Dunkin burns their beans; their coffee is bitter in an unpleasant way. QT is good (and affordable)**.
Anyway. I digress.
So. Tea. Dirt water.
A few weeks ago, whatever week it was that we had winter for like four days here in South Carolina before summer came back with 60-70 degree weather, I decided that I was going to find a tea and I was going to like it.
The Husband (look at that face up there 😍) indulged my nonsense, and we went to the grocery store to buy a couple of boxes of tea. Keep in mind, we bought two boxes of tea even though I didn't (at that time) like tea.
Well, evidently, I made some good choices for once. It took a little trial and error, and the advice of a friend and feedback from a sister to refine my tea-making skills, but I am happy to report that I have somehow, in less (fewer?) than a couple of weeks, learned to love tea!
And this AWESOME mug was a gift from The Husband! |
Turns out vanilla chai is delicious, and inspiring. Some of my best writing lately has been on vanilla chai.
Chamomile is amazing. Having something warm to drink before bed helps get me into the right cozy sleepy mood.
* This should be read as: I like to sit and just hang out at Starbucks while drinking their decent coffee.
** But not the best place to hang out...
January 6, 2020
HOCKEY!!
So I found on Groupon a deal for tickets to the Greenville Swamp Rabbits game yesterday. We had no other pressing plans for Sunday, so we went ahead and bought tickets to the game.
Now, I don't know what a swamp rabbit is. I looked it up, and they look like this:
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Kinda cute, I guess? |
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Go Swamp Rabbits! |
Ok, so hockey.
I love hockey, but more importantly, I love The Husband for agreeing at the very last minute to take me to some random-ass hockey game for a team we had never heard of and a creature that was a mystery to us. We got surprisingly good seats, and as an experienced hockey spectator who also gets cold really easily because of the giant hairless spot on my head, I knew that I had to bundle up and wear layers.
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I love that guy! |
As soon as the game was over and we were sitting in the car waiting to get out of the parking garage, we went back on Groupon and got tickets for another game soon!
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The Husband really is the best. |
*What a stupid name. #SorryNotSorry
**I'm sorry, I had to crack the joke while the year is still young!